Welcome to Hope for Merrick!

This page is dedicated to raising awareness and funds to support research for a cure for Sanfilippo Syndrome, a rare and devastating neurodegenerative disease affecting our beloved son, Merrick, and many other children around the world.

Merrick is a joyful child who loves puzzles, monster trucks, and Transformers. Despite his abundant energy and love for life, Merrick faces immense challenges due to Sanfilippo Syndrome, often likened to Alzheimer's in children. This heartbreaking condition leads to progressive mental and physical decline, with no FDA-approved treatment or cure currently available.

Our mission is to support the Cure Sanfilippo Foundation's efforts in funding critical research and clinical trials aimed at finding a cure. Through our fundraising initiatives, especially our "Cure Merrick" campaigns, community engagement, and spreading awareness, we aim to bring hope and action together to make a difference in Merrick's life and the lives of countless other children battling this disease.

Join us on this journey of hope and support. Together, we can make progress towards a cure for Merrick and all children affected by Sanfilippo Syndrome.

Thank you for your love, support, and generous contributions.

With gratitude, Nancy and Matt